All News & Updates
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ALD: Beyond the Diagnosis
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“A Beacon of Hope for Rare Disease Parents” by Maddy
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“Thirty Years Diagnosis of Myotubular Myopathy” by Theresa
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The X-Factor: Understanding X-Linked Conditions and the Women Who Carry Them
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Live Your Story by Faith Cosgrove
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Remember The Girls Stands in Support of Equitable Access to In Vitro Fertilization (IVF) in Alabama and Beyond
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collectively coeXisting (Blog Edition): Jami’s Story
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Being a Female with Fragile X Syndrome by Carly Dolan
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The Crucial Role of Genetic Testing for Females
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The Brand Remix
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“Are you guys gonna have more kids?” by Samantha Coover
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Taboo Talks Ep.8: Jaclynn’s Story
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Taboo Talks Ep.7: Sarah’s Story
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Taboo Talks Ep.6: Nicole’s Story
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Taboo Talks Ep.5: Kristy’s Story
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Taboo Talks Ep.4: Jessica’s Story
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Taboo Talks Ep.3: Emma’s Story
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Taboo Talks Ep.2: Sarah’s Story
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Taboo Talks Ep.1: Brittney’s Story
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Mom and Manifesting Carrier by Beth Bauer
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Our Thoughts on Noninvasive Prenatal Screening (NIPS)
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Carrier Connections: Interview with Barbara Machado
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Legally Blind With X-Linked Retinitis Pigmentosa by Tia Mc’Daniel
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Kisses and Cream: A Story of X-Linked Ichthyosis by Hillary Christie
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Female Carrier Misinformation in our Education System and Beyond by Anna Torrey
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The Unexpected by April Bizzell
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Childless Millennial by Lynzi Russell
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Why Having a Sibling With a Disability is a Gift by Julia Apodaca-Lane
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The ‘Back and Forth’ of Having Kids When You Carry A Rare Disease by Julia Apodaca-Lane
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My Experience Getting Tested for the ALD Gene by Anna Torrey
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Dreams by Sarah Tong