An Introduction to No Intervention

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No Intervention is a family planning option that entails making an active decision to have a child without intervention or genetic testing. Patients may make this choice due to religious or spiritual reasons, personal or emotional preference, financial limitations, and/or service access limitations.

When making the decision for no reproductive interventions, there are still some important things to consider and plan. Given potential health risks in some X-linked conditions, it is recommended that the mother create a pregnancy and delivery plan with a medical professional to keep the mom and baby safe. It is also important, depending on the condition, to determine if any testing after birth or newborn screening would be necessary to facilitate early treatments.


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This project is sponsored by Myriad Genetics.

Master List

Check out our X-linked condition master list.

To date, there have been hundreds of X-linked conditions identified—many of them only affecting a few people around the world. While all X-linked conditions are caused by mutations on the X chromosome, each condition is different and has a unique set of symptoms.

Genetic Counselor

Find a genetic counselor for additional advice.

Genetic counselors are healthcare professionals who help individuals and families understand how genetic information impacts their lives. A genetic counselor can provide the most relevant information about each family planning option and answer your questions.

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Connect with others like you in our Facebook support group.

Remember The Girls runs a private Facebook group with over 1,300 members impacted by more than 40 X-linked conditions and from more than 30 countries in the world. Join our online community of females impacted by X-linked conditions to seek and provide support, ask questions, find resources, and learn how to advocate.