X-linked conditions impact us more than you think
X-linked conditions impact
us more than you think
We are not just carriers.
We are mothers. caregivers. patients. advocates. friends. mentors. daughters. sisters.
Since our founding in 2017, our community has grown to include:
40 X-Linked Conditions
1,300 Community Members
30 Countries Worldwide
We are committed to advocating for females impacted by X-linked conditions.
Remember The Girls aims to break the stigma facing females impacted by X-linked conditions by providing them with tools to seek support, engage with research, and access family planning options, as well as by advocating for increased attention of medical professionals to the physical, emotional, and reproductive needs of this community.
Our priority is our community.
Read more about how Remember The Girls came to be and how we help fight against the stigma of being “just carriers.”
Doctors Said These Women’s Mutated Genes Wouldn’t Harm Them
But they were always at risk of developing diseases with potentially severe effects.
Remember The Girls: Bringing X-Linked Carrier’s Concerns to the Forefront
Witnessing the silencing of carrier’s voices based on the assumption that X-linked females are “just carriers” mobilized Tayor Kane, at the age of nineteen, to create a nonprofit organization.
Interview with Taylor Kane, founder of Remember The Girls
In this interview, Marie Discenza, MS, CGC, speaks with Taylor Kane, founder of Remember The Girls, an organization that helps provide community and support for carriers of X-Linked disorders.
Master List
Check out our X-linked condition master list.
To date, there have been hundreds of X-linked conditions identified – many of them are ultra-rare, only affecting a few people around the world. While all X-linked conditions are caused by mutations on the X chromosome, each condition is different and has a unique set of symptoms.
Family Planning
There are options for growing your family.
As an X-linked carrier or affected female, there are many options to start or continue your family. We’ve made a concerted effort to feature all routes you may take in your family planning journey, from deciding not to have children, to natural conception, to adoption, to IVF with PGT, and more.
Connect with others like you in our Facebook support group.
Remember The Girls runs a private Facebook group with over 1,300 members impacted by more than 40 X-linked conditions and from more than 30 countries in the world. Join our online community of females impacted by X-linked conditions to seek and provide support, ask questions, find resources, and learn how to advocate.
