Keeping you informed is important to us.

For a long time, females impacted by X-linked conditions were largely excluded from research and clinical studies. Still today, most research is focused on males. There remains a major lack of scientific research and understanding when it comes to females impacted by X-linked conditions.

In our research database, we’ve compiled all the research we could find on females with X-linked conditions and continue to update this when new research is published. We believe it’s important for our community to stay updated on relevant research and be able to utilize these studies to advocate for themselves and their care.

A line art illustration of two women side by side, with one arm around the other woman's shoulders.

Connect with others like you in our Facebook support group.

Remember The Girls runs a private Facebook group with over 1,300 members impacted by more than 40 X-linked conditions and from more than 30 countries in the world. Join our online community of females impacted by X-linked conditions to seek and provide support, ask questions, find resources, and learn how to advocate.