We practice what we preach, sharing the message with the world.

At Remember The Girls, we understand the importance of finding and sharing correct information about rare diseases and how they affect women and girls. We are dedicated to speaking up to ensure the women and girls with X-linked conditions have a voice.

Check out the articles below to see how Remember The Girls is featured.

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Our community is our priority.

Read more about how Remember The Girls came to be and how we help fight against the stigma of being “just carriers.”

Remember the Girls: Driving Awareness of Female Carriers of X-Linked Rare Diseases

Female carriers of X-linked recessive conditions are usually unaffected or only mildly affected, and their symptoms are often dismissed or ignored.

Doctors Said These Women’s Mutated Genes Wouldn’t Harm Them

But they were always at risk of developing diseases with potentially severe effects.

Remember The Girls empowers women affected by X-linked conditions

Remember The Girls provides education on X-linked conditions, family planning resources, personal stories, access to research studies, and an online group where women can share their experiences.

Remember The Girls: Bringing X-Linked Carrier’s Concerns to the Forefront

Witnessing the silencing of carrier’s voices based on the assumption that X-linked females are “just carriers” mobilized Tayor Kane, at the age of nineteen, to create a nonprofit organization.

Interview with Taylor Kane, founder of Remember The Girls

In this interview, Marie Discenza, MS, CGC, speaks with Taylor Kane, founder of Remember The Girls, an organization that helps provide community and support for carriers of X-Linked disorders.