We are the only global community of females with X-linked conditions.
Our community is 1,300 members strong! We’re impacted by over 40 different X-linked conditions and live in 30 different countries in the world. Each and every day we continue to grow stronger.
We encourage you to join our Support Group on Facebook to connect with other women and girls with X-linked conditions like yourself.
Our community is global.
To see the community pins, view the map on desktop.
Symptomatic
Asymptomatic
Family or Friend
Medical Professional
You are the reason we keep going. #NotJustCarriers
We love celebrating our members. Take a picture of yourself using the #NotJustCarriers and tag us on our socials!