We are the only global community of females with X-linked conditions.

Our community is 1,300 members strong! We’re impacted by over 40 different X-linked conditions and live in 30 different countries in the world. Each and every day we continue to grow stronger.

We encourage you to join our Support Group on Facebook to connect with other women and girls with X-linked conditions like yourself.

A line illustration of two open hands with a globe positioned above, symbolizing our community.

Our community is global.

To see the community pins, view the map on desktop.



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You are the reason we keep going. #NotJustCarriers

We love celebrating our members. Take a picture of yourself using the #NotJustCarriers and tag us on our socials!