Get involved by participating in research.
We have a long way to go in understanding how and why X-linked conditions impact females and advancing treatment options. Most research studies and clinical trials in X-linked conditions are done exclusively on males.
You can get involved in accelerating research and treatment options for females by participating in studies and trials. Below you will find both active and past research studies and clinical trials that include females, organized by X-linked condition.
Studies & Clinical Trials
Remember The Girls does not endorse any specific study or trial. Always talk to your doctor before deciding if a study or trial is right for you. If you have a question about a certain study or trial, please contact the study coordinator.
Research Complete
Exercise Study of Function and Pathology for Women With X-Linked Adrenoleukodystrophy
Influences on Female Adolescents’ Decisions Regarding Testing for Carrier Status of XSCID
Neuropathic Pain and Fabry Disease
Data Collected in Women With Fabry Disease
Females With Severe or Moderate Hemophilia A or B: A Multi-Center Study
Natural History and Outcomes in X-Linked Hypohidrotic Ectodermal Dysplasia
Myocardial Involvement in Carriers of Duchenne Muscular Dystrophy: An MRI-study