by Remember The Girls | Jan 26, 2024 | Podcast
collectively coeXisiting (Blog Edition): Jami’s Story Posted 01-26-2024Photo by Erika Mills Photography Q: Can you please introduce yourself? A: Hi! I’m Jami- full time Wife, Mama, employee, volunteer – all the things! Q: When did you first learn you are a...
by Remember The Girls | Oct 1, 2022 | Podcast
Taboo Talks Ep.8: Jaclynn’s Story Jaclynn Brown is a 36 years old woman from Manitoba, Canada where she and her partner run a busy Autobody Shop. She found out she was a carrier and patient with X-linked lymphoproliferative syndrome (XLP) following her...
by Remember The Girls | Sep 29, 2022 | Podcast
Taboo Talks Ep.7: Sarah’s Story Sarah K. is a 40-year-old photographer and barre instructor from Minnesota. In 1965, her mom’s brother Ladd became suddenly and seriously ill. He was eventually diagnosed with sudanophilic leukodystrophy, which we now know...
by Remember The Girls | Sep 16, 2022 | Podcast
Taboo Talks Ep.6: Nicole’s Story Nicole Hunter is a 30 year old woman from Virginia who is affected with Duchenne Muscular Dystrophy (DMD). She first became pregnant September 2020 and with no known family history of genetic diseases, it was a shock when it was...
by Remember The Girls | Sep 6, 2022 | Podcast
Taboo Talks Ep.5: Kristy’s Story Kristy McCracken is an advocate and patient of an x-linked condition in the Urea Cycle Disorder family. Her official diagnosis is Ornithine Transcarbamylase deficiency, commonly referred to as OTC. Kristy is a member of many...
by Remember The Girls | Aug 22, 2022 | Podcast
Taboo Talks Ep.4: Jessica’s Story Jessica Stephens is a 30 year old mum from Middlesbrough, United Kingdom (UK) who is affected with Ornithine Transcarbamylase Deficiency, shortened as OTC. Jessica lost her second baby, August, tragically to OTC deficiency when...
