by Remember The Girls | Aug 10, 2022 | Podcast
Taboo Talks Ep.3: Emma’s Story Emma Bliss learned of her X-linked myotubular myopathy carrier status the way many X-linked carriers do – by giving birth to a child with the condition after a healthy pregnancy and zero family history. Caleb, Emma’s...
by Remember The Girls | Aug 8, 2022 | Podcast
Taboo Talks Ep.2: Sarah’s Story Sarah Myatt is a single mom, elementary music teacher, and classical singer from Nova Scotia, Canada. She found out she carries the gene for Adrenoleukodystrophy (often shortened to ALD) after a phone call from a genetic counselor...
by Remember The Girls | Jul 24, 2022 | Podcast
Taboo Talks Ep.1: Brittney’s Story Brittney is a 37 year old woman from Baltimore, Maryland. Her story goes back to November 2018 when she found out at 10 weeks into her pregnancy that she was a carrier for Fragile X syndrome. When she received this call, she...
