by Remember The Girls | Nov 18, 2024 | Community
ALD: Beyond the Diagnosis Written by Remember The GirlsPosted 11-17-2024 Watching as her father’s mobility and memory deteriorated before her eyes, Dawn was no stranger to the devastating effects of what she attributed to her father’s progressing age. As her father’s...
by Remember The Girls | Jun 11, 2024 | Community
A Beacon of Hope for Rare Disease Parents Written by Faith CosgrovePosted 06-11-2024 Her sunny disposition and cheeky sense of humor may give the impression that Maddy has had an easy hand in life. However, beneath this jubilant exterior is a woman who has undergone...
by Remember The Girls | May 30, 2024 | Community
Theresa’s Story:”It took me thirty years to get the diagnosis of myotubular myopathy” Written by TheresaPosted 05-30-2024 Theresa is 67-years-old and impacted by myotubular myopathy (MTM). She learned about MTM 6 years ago after originally being...
by Remember The Girls | Apr 4, 2024 | Updates
The X-Factor: Understanding X-Linked Conditions and the Women Who Carry Them Written by Sarah Sharman, PhD, and Lillie MermoudOriginally published on The Smith FamilyPosted 04-04-2024 Taylor Kane was in kindergarten when her father passed away from...
by Remember The Girls | Mar 14, 2024 | Community
Live Your Story Written by Faith CosgrovePosted 03-14-2024 Imagine sitting in a doctor’s office as a young teenager with a world of possibilities at your fingertips and being told that from that point forward you were to stop doing everything you love. After being...