by Remember The Girls | Sep 19, 2023 | Community
Being a Female with Fragile X Syndrome Written by Carly DolanPosted 09-19-2023 Fragile X syndrome is a genetic disorder that is caused by changes in a gene called FMR1. FMR1 usually makes a protein called FMRP needed for brain development. People who have FXS don’t...
by Remember The Girls | Aug 3, 2023 | Education
The Crucial Role of Genetic Testing for Females Written by Remember The GirlsPosted 08-03-2023 Why Genetic Testing for X-Linked Mutations Matters Genetic testing has revolutionized the field of healthcare, offering individuals insights into their genetic makeup. For...
by Remember The Girls | Feb 28, 2023 | Updates
The Brand Remix Written by Remember The GirlsPosted 02-23-2023 Remember The Girls was founded in 2017 with a singular goal: to help females impacted by X-linked conditions. Since then, we have grown into a global organization serving 1,300 females impacted by 40...
by Remember The Girls | Feb 22, 2023 | Community
“Are you guys gonna have more kids?” Written by Samantha CooverPosted 02-22-2023 An innocent enough question. As adults it’s so common to meet someone and try to get to know them through questions like “So what part of town do you live in?” “What do you do for a...
by Remember The Girls | Oct 1, 2022 | Podcast
Taboo Talks Ep.8: Jaclynn’s Story Jaclynn Brown is a 36 years old woman from Manitoba, Canada where she and her partner run a busy Autobody Shop. She found out she was a carrier and patient with X-linked lymphoproliferative syndrome (XLP) following her...
