by Remember The Girls | Aug 8, 2022 | Podcast
Taboo Talks Ep.2: Sarah’s Story Sarah Myatt is a single mom, elementary music teacher, and classical singer from Nova Scotia, Canada. She found out she carries the gene for Adrenoleukodystrophy (often shortened to ALD) after a phone call from a genetic counselor...
by Remember The Girls | Jul 24, 2022 | Podcast
Taboo Talks Ep.1: Brittney’s Story Brittney is a 37 year old woman from Baltimore, Maryland. Her story goes back to November 2018 when she found out at 10 weeks into her pregnancy that she was a carrier for Fragile X syndrome. When she received this call, she...
by Remember The Girls | Jul 19, 2022 | Community
Mom and Manifesting Carrier Written by Beth BauerPosted 07-19-2022 It was November of 1993 when my first son, Alex, was born. He was diagnosed with Myotubular Myopathy (MTM). In meeting with the geneticist, I was told that I was “just” a carrier and would never have...
by Remember The Girls | Jan 18, 2022 | Education
Our Thoughts on Noninvasive Prenatal Screening (NIPS) Written by Remember The GirlsPosted 01-18-2022 Remember The Girls is a nonprofit organization that supports carriers of rare, genetic X-linked conditions, and advocates for greater access to affordable and...
by Remember The Girls | May 26, 2021 | Community
Carrier Connections: Interview with Barbara Machado Written by Remember The GirlsPosted 04-26-2021 Carrier Connections is a Remember The Girls program where we feature a different X-linked condition each month and interview female in the condition community. In the...
