Share Your Story

Taylor, Candice, Jillian, Tina & Olivia

Adrenoleukodystrophy Carriers

Your Story

 If you or a loved one is a female carrier of an x-linked recessive genetic disorder, we encourage you to share your story. Sharing your story can help raise awareness of the many issues facing x-linked carriers and remind both the patient and medical communities of the urgent need for studies, treatments and other resources for female carriers of x-linked genetic disorders. Tell us why you are not "JUST A CARRIER."  

Submit Your STORY