by Remember The Girls | Nov 16, 2020 | Community
Legally Blind With X-Linked Retinitis Pigmentosa Written by Tia Mc’DanielPosted 11-16-2020 The day after Christmas 2018 I started experiencing flashes of light in my peripheral and I instantly knew something was wrong, I made an appointment with an eye...
by Remember The Girls | Jul 11, 2020 | Community
Kisses and Cream: A Story of X-Linked Ichthyosis Written by Hillary ChristiePosted 07-11-2020 It all started with “I’ve never heard of this before, I just got off the phone with the children’s hospital, this is all the information I have and I know...
by Remember The Girls | Jun 30, 2020 | Education
Female Carrier Misinformation in our Education System and Beyond Written by Anna TorreyPosted 06-30-2020 Being from an ALD family, surrounded by medicine from an early age, I have always, always, always wanted to be a doctor. Since middle school, I have done what I...
by Remember The Girls | Apr 27, 2020 | Community
The Unexpected Written by April BizzellPosted 04-27-2020 When we are growing up we think about how we want our lives to be, how many children we want, if we’re going to get married, what kind of house we want to live in, all kinds of things. Those are the simple...
by Remember The Girls | Apr 22, 2020 | Community
Childless Millennial Written by Lynzi RussellPosted 04-22-2020 My decision to not have kids has been scrutinized by many people in my life. I have an X-linked genetic disorder that is categorized as a Urea Cycle Disorder. X-linked meaning my hypothetical unborn...
